An update – the good, the bad and the horrible…

I love Dr. pediatric neurosurgeon. Not only is he very bright, but he also has a child of his own with Down syndrome. A dear, three-year old cherub. Now, what are the chances of that happening? He told me that he found it odd that (being a neurosurgeon and all) he has a child with mental delay. I told him that these lovely children are only given to bright people, and the children are generally just as bright as their parents (really, as with any kiddo)! He agreed. LOL!

Needless to say, Elliot’s hydro is mild. His hydro is non-obstructive. His hydro is only a mere variant of Dandy-walker. Elliot does not have Dandy-walker. He has mild venous hypertension, and unless he becomes symptomatic (vomiting, convulsing, etc.) we need not worry about dear Wee E’s head. Phew!

The bad news, Elliot may have a tethered spinal cord. “A what, you ask?” Dr. pediatric neurosurgeon began looking between Elliot’s tiny bottom cheeks. I say, “What on earth are you doing?” Dr. goes on to tell me that Elliot has a small pit between his petite bottom cheeks. That, apparently, is an indication of a tethered cord. So, another MRI this week. Then, if the condition is found, surgery is warranted. ICK! That is the “horrible.” Surgery on my son’s spine?

As found on the web, here is why it is important to fix this problem ASAP

So, another update following another damn sedated MRI! Prayers are again requested for Wee E. Many thanks, friends!

As the neuro appointment approaches...

Oh, dear. I am so full of nervous tension. Elliot will visit Dr. Pediatric Neurosurgeon on Tuesday. We’ll go over the results from his not so pretty MRI last month.

Gosh, all I can do is pray that the doctor says something like this:

“Well, the hydrocephalus is mild; the hydrocephalus is non-obstructive."

"The hydrocephalus?" "Well, just don’t worry about it as it isn’t causing your blessed child to be symptomatic.”

“A shunt?" "Heck no!”

“Another syndrome?” “HECK no!”

I am merely asking for prayers. Dr. Pediatric Neurosurgeon dated one of my best friends from high school for many years. I hope he is honest and I hope he is good, and most of all, I hope what he tells me is reassuring. Wee E has been through too much already.

Speaking also of being through too much, my friend, Pam, could also use some prayers. Rhett will undergo more on Monday. Love you, Pam. And, hugs to dear Rhett.

Loves and Hates... (although I "hate" that word) :)

I have been tagged by dear Mrs. Wibbs with a love and hate meme.

Let’s see, where to start. I love the smell of my freshly bathed boys; Isaac especially as he is my little grimy muffin. Stinky baby – and I am in awe when I am able to get all of the stink off!

I love Elliot’s brushfield spots in his angelic eyes. It is almost as if I get a small glimpse of Heaven when gazing into them.

I love Nora’s stunning and virtuous curls. She is a cherub in disguise!

I hate the “R” word. And I hate it that I never seem to have the appropriate response to hearing it until after the fact. I love it that I have been blessed with a “perfect” child, and hate it that some people in the universe would never consider him to be described as such.

I love to make it up in the morning before everyone else. I need a bit (just a bit) of free time to collect my thoughts before the never ending feeding and diapering begins for the day. I hate to get client calls before 9 a.m. That is “MY” time with my children.

I love it that Nora has a loose tooth (the first one), but hate it that she is becoming a pre-teen at the youthful age of nearly 6.

I love Elliot’s slobber and his gooey kisses. I love it that Nora still asks for her special “night night” song that I made up to sooth her as a baby. I love Isaac’s magical, toothless grin.

I hate it that there are only 24 hours in each day, and I seem to tire by 7 p.m. every evening. I hate it that there is no time to spend alone with my husband and I feel as if I need to hand off child-rearing duties just as soon as he arrives home from work. I hate it that I have to work on the side, but do love making my clients happy.

I love the first snow of the season, but hate dragging the children out in Nebraska’s harsh winters. I love sun tans, but hate the damage incurred by indulging.

I love a clean house, but hate the fact that I am consumed with cleaning and cannot rid myself of the obsession.

I love wine, but hate hangovers!

I love life and pray that I am able to instill the same love of simple existence in my three beloved children. I love God above all and thank Him daily for my blessings.

I tag four sweet friends:

Stephanie

Shannon

Jess

Sam's momma

A friend in need...

A dear friend of mine (Pam, sweet Rhett’s mommy) and her family are dealing with some really trying times as of late. Many prayers are needed. Additionally, a fund raising effort is underway. Do visit her blog and leave a comment and a prayer. And, if your budget allows, I cannot think of a more worthwhile cause to donate to. Many thanks, friends.

Wordless Wednesday - Similarity

The photo is one year old today. The likeness still remains. For more WWs, click here.

Happy 41st Birthday, Jeff!

Wow - I hope I look 30 at 41! :) Afraid that isn't happening! Botox?

Love,

Michelle

For my bestest friend's sweet daughter! XXX!

Make a free ecard - it's easy!

Something worth reading...and doing something about

Many prayers for Brent Martin - an angel of our Father. This is so disturbing. A must read and an excellent blog mind you (Chewing the Fat). Dear God, this could be anyone who has been blessed with what the world refers to as a disability. Who really is "disabled?"

Wordless Wednesday - Just a silly one.

For more on WW, do click here.

Wee E discovered his face today...

Self-Stimulation

Check him out!

Wordless Wednesday (um, Tues. Ed.) - Sweet Dreams

For more Wordless Wednesdays, click here.